Kayla was diagnosed with Spina Bifida when her mom was 16 weeks. She was also diagnosed with hydrocephalus (water on the brain). Drs tried to get her mom to terminate the pregnancy saying Kayla would be a potato when she was born. Kayla was born at 36 weeks, she had her first surgery the day after she was born to close her back and place a shunt in her head to drain the water. Kayla also had club feet that had to be fixed via surgery and casting. She spent three weeks in the PICU before she got to come home. Kayla had also came home on a heart monitor because her heart rates kept dropping while she slept which thankfully resolved itself. Kayla was also diagnosed with urinary reflux which she’s had to have surgery to fix. Kayla is cathed three times a day due to the reflux, Kayla has had 16 total surgery in her short 6 years. Currently she is battling pressure sores on her back which she’s had for two and a half years, which interferes with being able to have the surgery she needs to place the rods in her back to keep pressure off her lungs. She has come so far and God’s love has brought us through it all and we know he will until the end!
Photog~ Ashley Burgess
A&G Photography Rockwell NC